To mark National Science Day and Rare Disease Day, the Tata Institute for Genetics and Society (TIGS), in collaboration with the National Centre for Biological Sciences (NCBS, Bengaluru), hosted Genetics deCoded at the Infosys Science Foundation, Bengaluru, on February 28, 2026. The event brought together scientists, students, patient advocates, and the public for a day of dialogue, learning, and engagement around genetics and rare diseases.
The National Science Day lecture was delivered by Prof. L. S. Shashidhara (NCBS, Bengaluru), who reflected on the importance of rational thinking in everyday life. Marking the 98th anniversary of Sir C. V. Raman’s discovery of the Raman Effect, he encouraged students to celebrate science locally and cultivate curiosity at every level.
Addressing the significance of Rare Disease Day, Dr. Rakesh Mishra (TIGS, Bengaluru) emphasized the role of science, policy, and collaboration in translating research into real-world impact and hope for patients and families affected by rare diseases.
A highlight of the event was a panel discussion on genetics and rare diseases, moderated by Prof. Alok Bhattacharya (WWGM, New Delhi). The panel featured Venkatasubramanian Narayanan (Peptris Technologies, Bengaluru), Dr. Meera Purushottam (NIMHANS, Bengaluru), Dr. Rakesh Mishra (TIGS, Bengaluru), and Dr. Manoj Srinivasa (SMSIMR), who shared diverse perspectives on research, policy, and patient engagement while interacting with an enthusiastic audience.
The event also witnessed the release of a policy document developed through ACTRaD conference, unveiled by Prof. Alok Bhattacharya, Dr. Rakesh Mishra, Prof. L. S. Shashidhara, Venkatasubramanian Narayanan, Dr. Meera Purushottam, and Dr. Manoj Srinivasa.
Adding a creative and inclusive dimension, Tickle Your Art presented their inspiring initiative that empowers artists with Down syndrome and intellectual disabilities by transforming their artwork into lifestyle products, highlighting the intersection of creativity and social impact. A deeply moving perspective came from Shubhraa Sinha of the World Without GNE Myopathy (WWGM), who shared her personal journey with a rare disorder. Her talk highlightes the urgent need for better access to treatments, stronger patient advocacy, and more inclusive healthcare pathways.
Scientists from TIGS also introduced participants to the science and careers behind genetics research. Dr. Gayatri R Iyer spoke about the importance of genomic testing and genetic counselling in diagnosing and managing rare diseases. Dr. Vasanth Thamodaran explored the potential of stem cells and genome editing, while Dr. Satyaprakash Pandey’s ‘Life of the Researcher (LOTR)’ offered an engaging look at the challenges and rewards of a career in genetics research.
The event space buzzed with activity as participants explored interactive stalls and hands-on learning experiences. Highlights included an escape room challenge, Foldscope demonstrations, and engaging science activities such as Genetic Jenga, Brain Buzz, Myth vs Fact, a working model demonstrating ‘How Cells Eat,’ and curated board games that made complex genetic concepts accessible and fun.
The Genetics Quiz drew enthusiastic participation. After an elimination round, 15 participants formed five teams, competing across three intense rounds before the contest concluded with an exciting tiebreaker.
The day concluded on a vibrant note with a musical performance by the Subramaniam Academy of Performing Arts, bringing together science, creativity, and community in a memorable way.
