Rare Genetic Diseases Research Summit (REDRESS) 2023, an indigenous and recurrent platform to bring together all RGD researchers and stakeholders working for the Indian Rare Disease population concluded in November last year. (Click here to access the meeting proceedings of REDRESS 2023)
The event was co organised by Organization for Rare Diseases India, Indian Council of Medical Research (ICMR) as the knowledge partner and BioSpectrum India as the media partner.
Recently 7 articles covering key insights from REDRESS has featured in BioSpectrum India!
Check them out below!
Rare Genetic Diseases Research Summit (REDRESS) 2023: Unveiling the Power of Multi Stakeholder Engagement – Highlights the need for a multi-pronged approach to accelerate diagnostic & therapeutic solutions for RGDs.
🖋️ Surabhi Srivastava and Saveetha Meganathan
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Rare Genetic Diseases: Policy & Insurance – The article delves into the need to understand what the rare disease policy, set up by the Indian government (2017 and 2021) offers & how it can be improved further.
🖋️ Saniya Mehraj, Shivranjani Moharir and Rajesh Iyer
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Indian Orphan Drug Market: Opportunities – This piece urges the need for definitive policies & assuming accountability for subsidising pharmaceuticals targeting RGDs.
🖋️ Saniya Mehraj, Shivranjani Moharir and Rajesh Iyer
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RGD Landscape and Diagnostics in India – This piece underscores the need for public awareness & a stronger societal support system for children grappling with rare diseases.
🖋️ Harvinder Khera and Runa Hamid
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Basic and Clinical Research – REDRESS 2023 – This piece focusses on the contemporary development in basic, clinical, translational fronts along with diagnostic modalities of RGDs.
🖋️ Gayatri Iyer and Vasanth Thamodoran
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Research, Innovation, & Hope for Genetic Diseases – This article discusses the challenges & opportunities in developing effective therapies and diagnostics for RGDs in the Indian context.
🖋️ Esha Srivastava and Saveetha Meganathan
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Rare Genetic Diseases Research Summit Calls for Collaboration to Conquer Challenges – Emphasizes on urging researchers, clinicians, pharmaceutical companies, & PAGs to join forces and tackle the challenges of RGDs
🖋️ Shweata N. Hegde, Saveetha Meganathan and Surabhi Srivastava
Read full article here