GNE Myopathy is an ultra-rare genetic disease characterised by progressive atrophy (wasting away) of skeletal muscles. The prevalence is estimated to be 1 to 9 in 1 million, evidently, there are many undiagnosed cases in India due to lack of awareness.
To create more awareness, the Tata Institute for Genetics and Society, in collaboration with World Without GNE Myopathy (WWGM), has created a poster on GNE Myopathy, especially aimed at educating healthcare providers.
Let’s join hands to raise awareness and support those affected by GNE Myopathy. For further inquiries, reach out to WWGM:
📧 Email: wwgm.india@gmail.com
🌐 Website: https://www.gne-myopathy.org/
Listen to our podcast, Conversations@TIGS on GNE Myopathy here
