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    SMART Summit 2025 – It’s a Wrap!

    โœจ The SMART Summit 2025, a one-day event brought together clinicians, researchers, policymakers, industry leaders, and patient advocacy groups (PAGs) to advance Spinal Muscular Atrophy (#SMA) research and care in India. Discussions covered research and clinical gaps, innovations in diagnostics and therapeutics, regulatory pathways, and the role of PAGs in advocacy. The keynote session featured [...]

    Rare Disease Day 2025

    โœจOn 28th February i.e. Rare Disease Day 2025 , TIGS and NCBS came together to raise awareness and foster discussions on rare diseases. The event started off with an insightful live art competition, where the participants expressed their creativity on the canvas on the theme 'What is rare?'. Dr. Runa Hamid from TIGS and Dr. [...]

    SMA Research & Technology (SMART) Summit 2025

    Join us for the SMA Research & Technology Summit (SMART) for a day of collaboration between experts, patient organizations and researchers to advance SMA diagnostics, treatment and care. ๐Ÿ”— Register here: https://bit.ly/3EQKYd3 This research summit is being organised in collaboration with National Centre for Biological Sciences, CureSMA Foundation of India and Indian Institute of Technology, Kanpur [...]

    Epidermolysis Bullosa: Scientific Perspectives and Public Health Actions | Demystifying Rare Genetic Diseases | Dr. Rakesh Mishra with Dr. K Thangaraj (Episode: 7)

    We are thrilled to bring you a new episode of the podcast series '๐——๐—ฒ๐—บ๐˜†๐˜€๐˜๐—ถ๐—ณ๐˜†๐—ถ๐—ป๐—ด ๐—ฅ๐—ฎ๐—ฟ๐—ฒ ๐—š๐—ฒ๐—ป๐—ฒ๐˜๐—ถ๐—ฐ ๐——๐—ถ๐˜€๐—ฒ๐—ฎ๐˜€๐—ฒ๐˜€'. This series which aims to raise awareness and curate expert conversations on the most pressing challenges surrounding rare genetic conditions. Listen into the fascinating world of genetics in a conversation between Dr. Rakesh Mishra and Dr. K Thangaraj [...]

    REDRESS 2024 – Advancing rare genetic disorder research together!

    โœจ We are thrilled to announce the successful completion of the 3rd edition of the Rare Genetic Diseases Research Summit (REDRESS 2024), organized by TIGS and Organization for Rare Diseases India along with the Indian Council of Medical Research (ICMR) as the knowledge partner. This one-of-a-kind 2-day transformative event brought together leading scientists, clinicians, government [...]

    Beyond the Bite: Wrapping up a successful 3-day journey into the fascinating world of mosquito biology and vector research at TIGS!

    Recently, the Insectary facility at TIGS successfully hosted a 3-day workshop, 'Beyond the Bite: Exploring Essentials of Mosquito Biology and Rearing'. This engaging workshop combined expert talks with hands-on practical sessions, offering participants an in-depth understanding of mosquito biology, vector research, and the latest developments in the field. The workshop was attended by a diverse [...]

    TIGS and ICAR – IIRR sign MoU

    ๐Ÿ“ TIGS and ICAR - IIRR ink MoU! Climate change presents a significant threat to crop yields, and malnutrition remains a serious issue in India. To address some of these challenges, TIGS and ICAR-IIRR have partnered to create rice varieties which are climate-resilient that can thrive in changing environmental conditions, while also improving its nutritional [...]

    Understanding Huntington’s Disease: Science, Support and Management | Demystifying Rare Genetic Diseases | Dr. Rakesh Mishra with Dr. Meera Purushottam (Episode: 6)

    We are thrilled to bring you a new episode of the podcast series '๐——๐—ฒ๐—บ๐˜†๐˜€๐˜๐—ถ๐—ณ๐˜†๐—ถ๐—ป๐—ด ๐—ฅ๐—ฎ๐—ฟ๐—ฒ ๐—š๐—ฒ๐—ป๐—ฒ๐˜๐—ถ๐—ฐ ๐——๐—ถ๐˜€๐—ฒ๐—ฎ๐˜€๐—ฒ๐˜€'. This series which aims to raise awareness and curate expert conversations on the most pressing challenges surrounding rare genetic conditions. Imagine gradually losing control of your movements, speech, and even memoryโ€” Huntingtonโ€™s disease (HD) does exactly that. It's [...]

    Bangalore Life Science Cluster condoles death of Ratan Tata

    The Bangalore Life Science Cluster (BLiSc) condoled the death of Ratan N Tata. BLiSc extended its deepest condolences for the loss of Mr. Tata, a visionary leader whose steadfast support has been instrumental in shaping the growth and success of its institutes. โ€œAs Chair of the TIFR Management Council, Mr. Ratan Tata played a crucial [...]

    Rare Genetic Diseases Research Summit (REDRESS) โ€“ 2024

    REDRESS 2024 Program Schedule Rare Genetic Diseases Research Summit (REDRESS) is an indigenous and recurrent platform to bring together all rare genetic disease researchers and stakeholders working for the Indian Rare Disease population. Last year we had our second meeting where several stakeholders had put forth their perspectives on the rare genetic diseases road map [...]

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